Let’s Walk to END EPILEPSY!

I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas.

As a person living with epilepsy, this is a cause that is close to my heart.

Epilepsy is the third most common neurological condition, and it affects more than three million people in the US alone.

There is a lot of stigma surrounding this disorder. By increasing awareness, we can spread important and accurate information about epilepsy. We can educate others about seizure first aid and end the stigma surrounding epilepsy.

The Epilepsy Foundation provides many needed services to the over 15,000 people living with epilepsy and seizure disorders in north and east Texas.

Join me in helping raise funds for an important organization that creates life changing opportunities for people living with seizure disorders.

Please consider making a donation on my fundraising page at the link below. No donation is too big or small.

Walk to END EPILEPSY

If you are around the area and would like to take a walk with me,  join my team Game of Temporal Lobe.

The Epilepsy Foundation Texas – Houston/Dallas/Fort Worth is a recognized 501c3 non-profit organization and all donations are completely tax deductible.

Thanks!
Vero

November is National Epilepsy Awareness Month: Ready to spread awareness?

purple ribbon

We’re a third of the way into the month so this post comes a little late, but late is better than never. November is National Epilepsy Awareness month, and this is our chance to share our story and educate others about seizures.

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In the winter of 2009, I awoke to confusion as paremedics held an oxygen mask to my mouth. My vision was blurred, and I could barely make out the faces of the people standing around me. Unable to see clearly and hearing unfamiliar voices, I panicked. I attempted to push and pull away, but my body would not obey. If I had the strength, I would have given those paramedics a good fight, but the seizure had left me completely fatigued. Instead, I demanded explanations and screamed why. And that is how my epilepsy journey began.

Almost a decade later, I’ve faced epilepsy in several forms. I faced weekly complex partial seizures that took the energy out of me and made me lose sense of time. I had brain surgery to try and remove the seizure focus. For three years, I was seizure free and regained the independence I’d lost. In 2016, the convulsive seizures began. After several attempts, I got my seizures under control. Today, I’ve finally gone eight months seizure free once again! This journey has been a long one, and it’s far from over, but I’m okay. I’ve survived and become so much stronger along the way. And this is thanks to all those people living with epilepsy who have shared their story with me. My hat goes off to them!

Epilepsy is the fourth most common neurological disorder. If a person has two or more unprovoked seizures that have occurred without having a known or reversible medical condition, they are diagnosed with epilepsy.

Epilepsy is a spectrum of seizure disorders that varies from person-to-person. Brain injuries and other medical conditions can be a cause for epilepsy, but most people never learn the underlying cause for their seizures.

Even if you don’t have or know anyone who has seizures, it’s important to get educated. Will you help me educate others?

It’s National Epilepsy Awareness Month. Let’s LEARN! 

 

 

Monday Reflections: Remembering Christmas

christmas tree

This time last year, it was a little over two weeks since I had left the hospital. My body was weak, and my meds kept me asleep rather than awake. I was too tired to do anything, and when I managed to stay up, it was difficult to concentrate. I can’t recall much of the 2013 holiday season, although I really try to.

As I think about this Christmas, a smile forms across my face. This year, I can and will remember everything!

So what happened this Christmas?

Family and friends gathered at my parents’ house. Lights covered entire rooms, poinsettias topped every table and wreaths adorned each door. Dead center in the living area, the colorful christmas tree glowed, and underneath lay a pile of presents. Next to the presents, were my little nieces eager to open them up.

Chatter could be heard around the house, including the laughter brought on by my father’s jokes. The Chef Masters, my mother and older sister, worked away in the kitchen. Their cooking filled the air with sweet, savory aromas. Dinner was nothing short of amazing!

For as long as I can remember, I’ve been the family’s Christmas elf. Organizing and making sure the right present was handed to the right person has always been my responsibility. I love this, and I look forward to entertaining everyone as I go around the room every year. My health had prevented me from passing out presents last year, but it never will again! I am and will always be the Christmas elf!

Today I reflect on the joy the holidays bring and how wonderful it is to spend it with the ones you love.

This year has been wonderful, and I continue to receive the best gift of all. I’ve had the love and support of my family and friends all these years. No matter how hard the travel or how scary this year may have seemed, they have always been on my Fighting Epilepsy team. Having them here is the best present I could ever receive.