As many of you know, epilepsy is a HUGE part of my life. Raising awareness and helping the Epilepsy Foundation Texas raise funds to provide medical care and support for people with epilepsy is something I’m very passionate about. My team, Game of Temporal Lobe, is participating in the Walk to END Epilepsy, and we’dContinue reading “The 2022 Walk to END Epilepsy is almost here!”
Tag Archives: seizures
If I were to have a seizure, would you know what to do?
I’m unconscious and unable to hear your call. My body is slowly starting to stiffen, and I begin to fall. The muscles are tightly contracted and wildly twitching and jerking out of control. Should you restrain me to stop my movements to prevent me from getting hurt, or do you just let the seizure takeContinue reading “If I were to have a seizure, would you know what to do?”
Star Wars (Epilepsy) Lesson #1
Twelve years ago, I was headed to University Medical Center Brackenridge in Austin, Texas to check-in for my first ever EMU (Epilepsy Monitoring Unit) stay. For the next few days, doctors would use video-electroencephalogram (EEG) monitoring technology to monitor my brain activity.
Monday Reflections: Epilepsy’s Double Edge
Dear Epilepsy, So much has happened since our last painful encounter, and, with each passing moment, I marvel at all the good that has come out of all the bad. Although I can’t say I miss you, I cannot deny the beauty in your double-edge. The limitations you set for me are infuriating and, atContinue reading “Monday Reflections: Epilepsy’s Double Edge”
There is little to no room for a slip-up with epilepsy
Disappointed in myself is what I am today. I’ve done so well just to ruin everything for one minor mistake due to simple laziness. Last night, one of my many medication alarms went off, but I failed to get up to take my medicine. So, what was so important that I couldn’t just get upContinue reading “There is little to no room for a slip-up with epilepsy”
Happy Brain-aversary! I’m three years seizure free!
Over four years ago, my dear friend, Epilepsy, decided to repay me a visit. For years, I struggled to get rid of her. She was everywhere I went. She was a parasite living deep within my temporal lobe who didn’t want to leave. Medicine after medicine couldn’t get her to go away so my doctorContinue reading “Happy Brain-aversary! I’m three years seizure free!”
Monday Reflections: Lingering Monster
A fun-filled night out with friends. A few good smiles and laughs. Some heartbreaking news. Some sorrow-filled tears. Whatever the reason. Whatever the cause. The memories still haunt. The monster still lingers. ——————————————————————————————————————————— I’ve been seizure free for 15 months now. It’s a length of time that I thought I would never see again, butContinue reading “Monday Reflections: Lingering Monster”
Let’s Walk to END EPILEPSY!
I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas. As a person living with epilepsy, this is a cause that is close to my heart. Epilepsy is the third most common neurological condition, and it affects moreContinue reading “Let’s Walk to END EPILEPSY!”
It’s been two years since I last saw my neurosurgeon. Two VERY long years. After my last visit, my doctor had me make my follow-up and MRI appointments in two years because everything was going according to plan. I was off my AEDs and had been seizure free for three years. He just wanted to makeContinue reading “Two years…”
Monday Reflections: One in twenty-six
Twenty-six people living ordinary lives. Some learning to walk for the very first time. Others with wrinkles around their eyes. All filled with dreams waiting to be realized. Then, one of those twenty-six is caught off guard. Their greens turned red. Their ups turned upside down. Their life taken away by a silent, electrical terrorist.Continue reading “Monday Reflections: One in twenty-six”