Dear Epilepsy…

It’s been two years since we had our last fight. Although it wasn’t one of the most violent ones, it also wasn’t the least. The fear you swept right through me that night I’ll never forget.

Panic. Terror. Dread. Those are the things I remember the most. You were very determined to ruin the tranquility I’d gained in your absence. 

Long before I heard my Apple Watch alert me that my heart rate had spiked, I knew you were here. You’re almost like a sixth sense now, and I know when you want to take the driver’s seat. 

Your aura always feels like a scene from a nightmare. You want to run, but your legs won’t move. It’s slow and fast. It’s still and moving. It’s a painful slow motion picture and time-lapse all rolled into one.

Luckily, the meds made sure you didn’t stay for long, and I was able to regain some composure. 

Two years have come and gone, and you’ve kept quiet. It feels strange and surreal. And it feels SO good! 

These past twelve years have been a crazy ride, and I’m sure there will be many more bumps along the road. But I’ve learned so much in this journey, and I’m ready to take anything head on. So buckle up and stay in the backseat my annoying friend because the driver’s seat is all mine!

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I’ve climbed and soared. I’ve stumbled and fallen. I’ve gained hope. I’ve lost some. I’ve smiled. I’ve cried. I’ve gone through all the motions, but I’ve never given up. Because of persevering through that struggle, I am finally two years seizure free!

The happiness this milestone brings is overwhelming, and I can’t wait for the next one to get here! As I move forward, I know what comes next will not be easy. Let’s face it. When will it ever be?

But whatever comes my way, I know I can handle it because I have all of you. Your support has fueled me and kept me going. These two years were a success because of you. THANK YOU!

November is National Epilepsy Awareness Month!

Epilepsy isn’t biased. It doesn’t care about who you are or where you’re from. It can affect anyone with a brain.

1 in 10 people will have at least one seizure in their lifetime, and 1 in 26 will develop epilepsy.

As one of those 1 in 26, I ask for your help to spread awareness about this neurological disorder. Be part of #StaySafeSide, a nationwide effort highlighting the importance of recognizing a seizure and promoting seizure first aid.

Seizure first aid isn’t brain surgery. It’s as simple as – Stay, Safe, Side.

See the Epilepsy Foundation’s Seizure First Aid poster below to learn how to be seizure smart.

(Click on the image to download a copy.)

Dare to be seizure smart! Educate others about seizure preparedness and encourage others to take action. Together we can make a difference!

 

Let’s Walk to END EPILEPSY!

I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas.

As a person living with epilepsy, this is a cause that is close to my heart.

Epilepsy is the third most common neurological condition, and it affects more than three million people in the US alone.

There is a lot of stigma surrounding this disorder. By increasing awareness, we can spread important and accurate information about epilepsy. We can educate others about seizure first aid and end the stigma surrounding epilepsy.

The Epilepsy Foundation provides many needed services to the over 15,000 people living with epilepsy and seizure disorders in north and east Texas.

Join me in helping raise funds for an important organization that creates life changing opportunities for people living with seizure disorders.

Please consider making a donation on my fundraising page at the link below. No donation is too big or small.

Walk to END EPILEPSY

If you are around the area and would like to take a walk with me,  join my team Game of Temporal Lobe.

The Epilepsy Foundation Texas – Houston/Dallas/Fort Worth is a recognized 501c3 non-profit organization and all donations are completely tax deductible.

Thanks!
Vero

Seizure free for one year!!!

Memories of the past three years float around in my mind. As I sort through the trying and sunny times, it’s almost impossible to put all my feelings into words.

There is heartache for the loved ones I’ve lost along the way. There is fright and frustration for the storms I’ve had to face.

There is embarrassment for all the silly things I’ve managed to do. There is love and gratitude for the kindness and encouragement my family and friends have given me.

There is a sense of accomplishment for sticking it through. And there are fuzzy, warm motions stirring inside today, and I can’t help but smile.

It’s hard to believe that 365 days have come and gone, but the day is finally here!

Today, there is a purple sunrise, and it simply feels like a dream.

I’m one year seizure free!

#MyEpilepsyHero

I wouldn’t have made it through my epilepsy journey, if it hadn’t been for all the love and support I received from my amazing family and friends. It was because of my wonderful purple support system that I was strong enough to make it out of those toughest storms.

I owe them plenty. They are all and will always be the greatest epilepsy soldiers and heroes I know!

Yet, there is a BIG thank you deserved to a man who is responsible for the “C” shaped scar on my head.

Dr. Bruce Mickey is a man with the bravery of Bruce Wayne, in order to put up with the likes of me as a patient. He is a great doctor who wears the kindest smile, just like the happiest mouse in the world. He is #MyEpilepsyHero.

Dr. Mickey is a wonderful neurosurgeon who not only left me with a cool haircut, but left me seizure free! Thank you for my seizure freedom, and thank you for your continued care!

And as promised, here is my MyEpilepsyHero shout out.

 

Happy Three Year Brainaversary!

seizure-free-poster

It’s hard to believe that 1,095 days of seizure freedom have passed! The time where a couple of weeks without a seizure felt like a victory is now a distant memory.

I am so happy and thankful for my family and friends who’ve helped me along the way. I can never repay them for all the love and support they have given me, but I hope this small brainaversary entry will show them how grateful I truly am.

Children have monsters living under their bed.
My hidden monster lived inside my head.
Covering myself in blankets would not help a single thing.

Although the doctors tried to put the puzzle together,
I always felt like a broken porcelain doll forever.
Hiding and crying, you were there to put me back together again.

Thank you my purple support system for giving me a listen.
Thank you for your pep talks and words of wisdom.
Thank you for all the times you made me see reason.

I know I wasn’t the most patient of girls,
especially when that monster gave me a swirl.

Even with all my fits and tantrums,
you helped me fight my phantoms.

Thank you my purple system for all that you continue to do.
It is because of you that I am whole and new!

To everyone out there with a hole inside their head, I want to wish you a Happy Brainaversary!

Epilepsy Defeated

Brain-Aversary

The left and the right brain, they didn’t much agree.
I had to tell the doctor. It was time for him to intervene.

The journey was not pleasant, but neither was it bad.
I found strength in my weakness.
I found courage I thought I’d never have.

I’m grateful for all I’ve been through,
For the love and support I’ve had along the way.

I’m not ashamed, but proud to wear my scar.
It reminds me I’m stronger than epilepsy.

 One year ago today, I let the doctor poke at my brain. I guess what he did kind of worked because I’ve been seizure free ever since.

To others out there just like me, I want to wish you a Happy Brainaversary!