I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas.
As a person living with epilepsy, this is a cause that is close to my heart.
Epilepsy is the third most common neurological condition, and it affects more than three million people in the US alone.
There is a lot of stigma surrounding this disorder. By increasing awareness, we can spread important and accurate information about epilepsy. We can educate others about seizure first aid and end the stigma surrounding epilepsy.
The Epilepsy Foundation provides many needed services to the over 15,000 people living with epilepsy and seizure disorders in north and east Texas.
Join me in helping raise funds for an important organization that creates life changing opportunities for people living with seizure disorders.
Please consider making a donation on my fundraising page at the link below. No donation is too big or small.
Walk to END EPILEPSY
If you are around the area and would like to take a walk with me, join my team Game of Temporal Lobe.
The Epilepsy Foundation Texas – Houston/Dallas/Fort Worth is a recognized 501c3 non-profit organization and all donations are completely tax deductible.
Memories of the past three years float around in my mind. As I sort through the trying and sunny times, it’s almost impossible to put all my feelings into words.
There is heartache for the loved ones I’ve lost along the way. There is fright and frustration for the storms I’ve had to face.
There is embarrassment for all the silly things I’ve managed to do. There is love and gratitude for the kindness and encouragement my family and friends have given me.
There is a sense of accomplishment for sticking it through. And there are fuzzy, warm motions stirring inside today, and I can’t help but smile.
It’s hard to believe that 365 days have come and gone, but the day is finally here!
Today, there is a purple sunrise, and it simply feels like a dream.
I’m one year seizure free!
After three years, I never thought the monster would awaken. Twenty months ago, what I thought would never happen again did. With the simple passing of time, the tides rose to all-time high, and the storm struck violently once again. Continue reading
I wouldn’t have made it through my epilepsy journey, if it hadn’t been for all the love and support I received from my amazing family and friends. It was because of my wonderful purple support system that I was strong enough to make it out of those toughest storms.
I owe them plenty. They are all and will always be the greatest epilepsy soldiers and heroes I know!
Yet, there is a BIG thank you deserved to a man who is responsible for the “C” shaped scar on my head.
Dr. Bruce Mickey is a man with the bravery of Bruce Wayne, in order to put up with the likes of me as a patient. He is a great doctor who wears the kindest smile, just like the happiest mouse in the world. He is #MyEpilepsyHero.
Dr. Mickey is a wonderful neurosurgeon who not only left me with a cool haircut, but left me seizure free! Thank you for my seizure freedom, and thank you for your continued care!
And as promised, here is my MyEpilepsyHero shout out.
It’s hard to believe that 1,095 days of seizure freedom have passed! The time where a couple of weeks without a seizure felt like a victory is now a distant memory.
I am so happy and thankful for my family and friends who’ve helped me along the way. I can never repay them for all the love and support they have given me, but I hope this small brainaversary entry will show them how grateful I truly am.
Children have monsters living under their bed.
My hidden monster lived inside my head.
Covering myself in blankets would not help a single thing.
Although the doctors tried to put the puzzle together,
I always felt like a broken porcelain doll forever.
Hiding and crying, you were there to put me back together again.
Thank you my purple support system for giving me a listen.
Thank you for your pep talks and words of wisdom.
Thank you for all the times you made me see reason.
I know I wasn’t the most patient of girls,
especially when that monster gave me a swirl.
Even with all my fits and tantrums,
you helped me fight my phantoms.
Thank you my purple system for all that you continue to do.
It is because of you that I am whole and new!
To everyone out there with a hole inside their head, I want to wish you a Happy Brainaversary!
The left and the right brain, they didn’t much agree.
I had to tell the doctor. It was time for him to intervene.
The journey was not pleasant, but neither was it bad.
I found strength in my weakness.
I found courage I thought I’d never have.
I’m grateful for all I’ve been through,
For the love and support I’ve had along the way.
I’m not ashamed, but proud to wear my scar.
It reminds me I’m stronger than epilepsy.
One year ago today, I let the doctor poke at my brain. I guess what he did kind of worked because I’ve been seizure free ever since.
To others out there just like me, I want to wish you a Happy Brainaversary!
The required six-month seizure free restriction for driving in Texas has finally come and past. Now, it’s time to get out of the passenger’s seat and step on the gas!
Looking at this just makes me smile!
I had been running like a predator after a prey for far too long. More sunsets had taken place than I could count, and I could barely recognize myself. I didn’t know who I was. I didn’t know where I belonged. I just knew I was tired of going nowhere. It was time to break the shackles I had gotten myself into. I needed to get out of this abyss of angry solitude.
This is the untold tale of epilepsy and how I survived it.
To: My very own Hidden Disorder
For the longest time, you controlled me.
You held on tightly and wouldn’t let me be.
Six months ago today, I made a choice.
And I now no longer hear your voice.
Our friendly fights are over.
There is now a sense of closure.
My friendly enemy, it’s time to say goodbye
I’m going to shout and fly high.
This is what it looks like to be six-months seizure free!
My Monday reflection: I have a hole in my head, but it’s all right. It’s been filled with seizure free freedom that I’ve longed for and now have.