Monday Reflections: Epilepsy Visualized

I’m alone. I’m in company with myself. My thoughts, my consciousness are my only companions. Between these four walls, I’m isolated from the life I used to live. I’m removed from what was and what will never be.

In this place, change is nowhere to be found. Everyday is the same, constant. Each Cloned Day blurs into one. And in this oneness, I’m alone.

Light shining through and eventually fading from my window are my only reminders that Time is indeed changing. Without any consideration, Time passes and pays little to no attention to the mess that stirs deep inside.

This routine blandness is overwhelming.

Alarm. Medication. Pain. Exhaustion. Sleep. Repeat.
Alarm. Medication. Pain. Exhaustion. Sleep. Repeat.

My invisible monster is no longer hidden. In this quarantine, it is vivid now more than ever. A reflection of my inner self is visible. My already quarantined mind transitions into this new world seamlessly.

My dear friend, Epilepsy, fits in perfectly. And it takes on an almost tangible form because this quarantine is no different from the one I was already living in.

Managing life with epilepsy isn’t easy. Darkness tries to dim the light. There are more blues than yellows. You fail to see the ups and focus on the downs. The struggle is always going to be there. And in these times, it’s easy to feel alone and forgotten. We just need to remind ourselves that we are stronger than epilepsy.

Monday Reflections: One Moment

One moment is all it takes for your life to change.
One moment is all it takes for your heart to break.

In one moment, your mind painfully takes over.
In one moment, your body seizes and loses control.

Overtime, you’ll come to feel lonely and defeated.
Overtime, you’ll regain some normalcy and hope.

And then you’re shattered once again.
And the journey seems far from over.

One moment erases all your progress.
One moment hurts and makes you cry.

In one moment, you’ve gone from whole to broken.
In one moment, you’ve lost what you worked hard to gain.

Overtime, you’ll feel even more alone and beaten.
Overtime, you’ll slowly regain some confidence and joy.

And seasons will never stop turning.
And there will be fewer ups than downs.

Wherever you are, you don’t have to let that one moment define you.
Whatever path you’re on, know someone else is along the same trail.

There is a new tomorrow so let’s travel hand in hand.
The journey is always easier when there is more than just one.

 

Let’s Walk to END EPILEPSY!

I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas.

As a person living with epilepsy, this is a cause that is close to my heart.

Epilepsy is the third most common neurological condition, and it affects more than three million people in the US alone.

There is a lot of stigma surrounding this disorder. By increasing awareness, we can spread important and accurate information about epilepsy. We can educate others about seizure first aid and end the stigma surrounding epilepsy.

The Epilepsy Foundation provides many needed services to the over 15,000 people living with epilepsy and seizure disorders in north and east Texas.

Join me in helping raise funds for an important organization that creates life changing opportunities for people living with seizure disorders.

Please consider making a donation on my fundraising page at the link below. No donation is too big or small.

Walk to END EPILEPSY

If you are around the area and would like to take a walk with me,  join my team Game of Temporal Lobe.

The Epilepsy Foundation Texas – Houston/Dallas/Fort Worth is a recognized 501c3 non-profit organization and all donations are completely tax deductible.

Thanks!
Vero

International Epilepsy Day

 

Just in case the title didn’t give it away, today is International Epilepsy Day!

What is International Epilepsy Day you might ask?

In 2015, the International Bureau for Epilepsy and the International League Against Epilepsy came together to provide a platform for people living with epilepsy to share their stories around the world. Now, the second Monday in February is designated to do just that.

Today, 120 countries advocate to spread awareness about this neurological disorder and fight to get legislative rights for people living with epilepsy. The goal is to educate, eliminate the public fear and stigma that comes with this disorder and encourage those living with epilepsy to live their life to the fullest.

Join the Epilepsy Community by helping us get #EpilepsyDay to trend on social media. Make Epilepsy Day successful so we can get better care, improved treatments and greater funds for much needed medical research.

Don’t know where to start? You can visit the International Epilepsy Day website to get some ideas.

Will you join me?

 

November is National Epilepsy Awareness Month: Ready to spread awareness?

purple ribbon

We’re a third of the way into the month so this post comes a little late, but late is better than never. November is National Epilepsy Awareness month, and this is our chance to share our story and educate others about seizures.

_________________________________________________________________________________________________________

In the winter of 2009, I awoke to confusion as paremedics held an oxygen mask to my mouth. My vision was blurred, and I could barely make out the faces of the people standing around me. Unable to see clearly and hearing unfamiliar voices, I panicked. I attempted to push and pull away, but my body would not obey. If I had the strength, I would have given those paramedics a good fight, but the seizure had left me completely fatigued. Instead, I demanded explanations and screamed why. And that is how my epilepsy journey began.

Almost a decade later, I’ve faced epilepsy in several forms. I faced weekly complex partial seizures that took the energy out of me and made me lose sense of time. I had brain surgery to try and remove the seizure focus. For three years, I was seizure free and regained the independence I’d lost. In 2016, the convulsive seizures began. After several attempts, I got my seizures under control. Today, I’ve finally gone eight months seizure free once again! This journey has been a long one, and it’s far from over, but I’m okay. I’ve survived and become so much stronger along the way. And this is thanks to all those people living with epilepsy who have shared their story with me. My hat goes off to them!

Epilepsy is the fourth most common neurological disorder. If a person has two or more unprovoked seizures that have occurred without having a known or reversible medical condition, they are diagnosed with epilepsy.

Epilepsy is a spectrum of seizure disorders that varies from person-to-person. Brain injuries and other medical conditions can be a cause for epilepsy, but most people never learn the underlying cause for their seizures.

Even if you don’t have or know anyone who has seizures, it’s important to get educated. Will you help me educate others?

It’s National Epilepsy Awareness Month. Let’s LEARN! 

 

 

Monday Reflections: The Beast Within

How do you live with a monster in your head?
How do you continue when it tries to knock you dead?

I’ve found myself caught between two worlds.
There’s the easygoing Dr. Jekyll.
And there’s the frightening Mrs. Hyde.

Jekyll and Hyde.
Which one really am I?

I can’t control the latter.
I want to hold onto the former.

When there is no solution, there are two things you can do.
You can succumb to the maddening sadness and let it take its toll.
Or you can make the best of the situation with all your heart and soul.


My Monday Reflections:
We never know what cards we will be dealt with, but it’s fruitless spending our energy trying to alter the things we cannot change. Life must go on. Why not make the most of it with the ones we love?

 

My Epilepsy Journey…updated

purple ribbon

I’ve left this blog abandoned for far too long. Life has a way of passing by so quickly. If it wasn’t for the change of green leaves to red, yellow and orange, we might just forget what season we’re in. As Purple Day approaches, I thought I’d revisit and update my epilepsy journey. After all, Purple Day is dedicated to raising awareness for epilepsy worldwide. By sharing our stories, we can teach other about this neurological disorder. 

Will you join me in wearing purple on March 26th to raise awareness for epilepsy? Continue reading

2018 Stroll for Epilepsy here we come!

With trying to get my seizures under control and adjusting to my new meds, unfortunately, I won’t be making it to the National Walk for Epilepsy in Washington this year.

However, this doesn’t mean I can’t walk here in Texas!

If you’re in the area and would like to walk for a good cause, please join me in strolling at the 2018 Stroll for Epilepsy in Dallas, Texas.

My team, Game of Temporal Lobe, will be raising awareness and funds for the Epilepsy Foundation of Texas, and we’d love for you to be part of our team!