Twenty-six people living ordinary lives.
Some learning to walk for the very first time.
Others with wrinkles around their eyes.
All filled with dreams waiting to be realized.
Then, one of those twenty-six is caught off guard.
Their greens turned red. Their ups turned upside down.
Their life taken away by a silent, electrical terrorist.
One in twenty-six people will hear three life changing words.
You have epilepsy.
I’m the one in 26.
I will always be tired.
I will always have a foggy memory.
I will always be a tiny bit moody.
I will always wonder why.
But I will never give up.
I will fight for the next one in twenty-six.
I will be there to offer a helping hand.
Living with epilepsy isn’t easy, but it hasn’t been all bad. I’ve learned how strong I can truly be, and how I can make a difference. This past month, I was able to offer some advice to a girl who had just been diagnosed. Being able to help her make sense of everything and guide her through this difficult time has made every painful moment worthwhile. If I had decided not to get back up all those times I thought I couldn’t, I wouldn’t be able to offer her solace today. Sticking it out is difficult, but never impossible. Today I reflect on that.
The atmosphere is but a blank canvas. Color exists only in the form of charcoal grays. I’m standing in the middle of nowhere where the mountains are my only companions.
I tip toe across this rocky terrain hoping not to fall through the cracks. In this place, I’m searching for the girl I used to know. I’m looking to find traces of her existence that might still remain. Continue reading
It’s hard not to fall back on this color this month. March 26 is Purple Day: Epilepsy Awareness Day! It’s a day meant to educate people about this neurological disorder and support those who live with it everyday.
Purple is a beautiful color. It falls between red and blue on a color spectrum. It’s right in the middle of the warmest and coolest colors.
Epilepsy is a brain disorder that involves spontaneous, recurring seizures. A seizure occurs when electrical activity in the brain is disturbed and excited parts of the brain are not able to perform their normal tasks. During a seizure, there can be alterations in sensations, movements, awareness or behavior. There are several types of seizures so no two cases can be considered identical.
There is no cure for epilepsy, but there are treatments that can help eliminate or reduce the occurrence of seizures. Several types of medications can be taken to keep seizures under control. Different types of surgical procedures can be performed to remove the seizure focus or brain lesion, such as tumors and scars, which may be the cause for the seizures. There are also therapies like the Ketogenic diet and Vagus nerve stimulations that can be used help get rid of seizures. The specifics of treatments will be given at a later time. This month is a journey toward purple after all.
I’ve come to learn that there is a delicate balance between the right combination of medications used and precise dosages needed to keep my seizures under control. Medications have failed to succeed for me so I sought out brain surgery. I’m nearing the end of my seizure disorder and at the beginning of my post-operative recovery.
I’ve been caught up in each extreme of a color spectrum. I’ve felt the blues just to turn around and see red. Purple is right in the middle between the brightest and darkest days I’ve faced. In that stable intermediate, I’ve found composure. It may take time to get to your right shade of purple, but together I believe we can get there. One day, we will all end up right in between the good and bad. I wear purple not just because I’m a person living with epilepsy. I wear purple because I am part of something worth fighting for. Purple Day is for you and I! It’s a reminder for us to fight a little harder for the battle we will both win!
Will you wear purple with me on March 26?