November is National Epilepsy Awareness Month: Ready to spread awareness?

purple ribbon

We’re a third of the way into the month so this post comes a little late, but late is better than never. November is National Epilepsy Awareness month, and this is our chance to share our story and educate others about seizures.

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In the winter of 2009, I awoke to confusion as paremedics held an oxygen mask to my mouth. My vision was blurred, and I could barely make out the faces of the people standing around me. Unable to see clearly and hearing unfamiliar voices, I panicked. I attempted to push and pull away, but my body would not obey. If I had the strength, I would have given those paramedics a good fight, but the seizure had left me completely fatigued. Instead, I demanded explanations and screamed why. And that is how my epilepsy journey began.

Almost a decade later, I’ve faced epilepsy in several forms. I faced weekly complex partial seizures that took the energy out of me and made me lose sense of time. I had brain surgery to try and remove the seizure focus. For three years, I was seizure free and regained the independence I’d lost. In 2016, the convulsive seizures began. After several attempts, I got my seizures under control. Today, I’ve finally gone eight months seizure free once again! This journey has been a long one, and it’s far from over, but I’m okay. I’ve survived and become so much stronger along the way. And this is thanks to all those people living with epilepsy who have shared their story with me. My hat goes off to them!

Epilepsy is the fourth most common neurological disorder. If a person has two or more unprovoked seizures that have occurred without having a known or reversible medical condition, they are diagnosed with epilepsy.

Epilepsy is a spectrum of seizure disorders that varies from person-to-person. Brain injuries and other medical conditions can be a cause for epilepsy, but most people never learn the underlying cause for their seizures.

Even if you don’t have or know anyone who has seizures, it’s important to get educated. Will you help me educate others?

It’s National Epilepsy Awareness Month. Let’s LEARN! 

 

 

2018 Stroll for Epilepsy here we come!

With trying to get my seizures under control and adjusting to my new meds, unfortunately, I won’t be making it to the National Walk for Epilepsy in Washington this year.

However, this doesn’t mean I can’t walk here in Texas!

If you’re in the area and would like to walk for a good cause, please join me in strolling at the 2018 Stroll for Epilepsy in Dallas, Texas.

My team, Game of Temporal Lobe, will be raising awareness and funds for the Epilepsy Foundation of Texas, and we’d love for you to be part of our team!

 

Unite and Wear Purple

Go Purple Epilepsy Logo

For the past couple of months, I’ve been preparing myself for the National Walk for Epilepsy in DC. As I made my daily walk the other day, I realized the amount of progress I’ve made since surgery.

Fifteen months ago, brain surgery had left my body weak. It was impossible to make it from my bedroom to the living room alone. After a couple of months, although with difficulty,  I was finally able to walk from my doorstep to the mailbox. Today, I can walk, jog or run for as long as my not so athletic self can handle.

I’m proud of my accomplishments, but I can’t say it was easy getting there. Along my path to recovery, there have been many hurdles. I’ve felt like giving up more times than I can count, but I didn’t.

If there is anything epilepsy has taught me it’s this:

When you think you’ve taken one step forward just to take two steps back, don’t fret because it isn’t over. Life is a sea filled with mild and dangerous tides. Sometimes we need to be pulled back to come back so much stronger. The rough patch will pass, as long as we keep treading on. When all is over, we’ll realize the hurdles are nothing more than a nuisance because we are capable of walking through it all.

Today is Purple Day – Epilepsy Awareness Day!

It is a day I look forward to each year because it is a symbol that epilepsy doesn’t have to be a lonesome battle. When we come together on Purple Day, we take a step forward in finding an end to epilepsy.

So let’s talk about our seizing struggles and what we’ve done to hold strong. Educating others about epilepsy is important. We want others to be there for us just as much as they want to be there for us too. By raising awareness about this neurological disorder, we can do that.

This fight cannot be won alone, but I know we can all win. Let’s paint the world purple and spread awareness about epilepsy all around the world! 

Here are some links to help get you started.

Purple Day: http://www.purpleday.org/aboutepilepsy
Epilepsy Foundation: http://www.epilepsy.com
National Walk for Epilepsy: http://walkforepilepsy.org