As many of you know, epilepsy is a HUGE part of my life. Raising awareness and helping the Epilepsy Foundation Texas raise funds to provide medical care and support for people with epilepsy is something I’m very passionate about. My team, Game of Temporal Lobe, is participating in the Walk to END Epilepsy, and we’dContinue reading “The 2022 Walk to END Epilepsy is almost here!”
Tag Archives: Epilepsy Foundation
If I were to have a seizure, would you know what to do?
I’m unconscious and unable to hear your call. My body is slowly starting to stiffen, and I begin to fall. The muscles are tightly contracted and wildly twitching and jerking out of control. Should you restrain me to stop my movements to prevent me from getting hurt, or do you just let the seizure takeContinue reading “If I were to have a seizure, would you know what to do?”
News from the pipeline: 2020 Epilepsy Community Day
Photo by Christophe Dion on Unsplash On a screen filled with pink and purple hues, white lines resembling brain waves merged to form the profile view of a person. A sweet and lively melody accompanied the image, and I waited patiently in excitement for the 2020 Epilepsy Pipeline Community Day to begin this past Saturday morning. JonContinue reading “News from the pipeline: 2020 Epilepsy Community Day”
Dialogue is the best medicine so let’s talk about it!
Photo by Amin Hasani on Unsplash The stigma and fear surrounding seizure disorders makes talking about epilepsy difficult. Telling someone about a very private part of your life that you might not quite fully understand yourself is nerve-racking. You can never know how a person might react and worry that you’ll be seen and treatedContinue reading “Dialogue is the best medicine so let’s talk about it!”
Ending Epilepsy Starts With Us!
Since we’ve all been confined to the inside of our homes, it might seem a little harder to learn more about and advocate for the things we are passionate about. But in this virtual world we’ve all adapted to, anything is possible! As a big advocate for The Epilepsy Foundation, I’m excited that their 2020 EpilepsyContinue reading “Ending Epilepsy Starts With Us!”
November is National Epilepsy Awareness Month!
Epilepsy isn’t biased. It doesn’t care about who you are or where you’re from. It can affect anyone with a brain. 1 in 10 people will have at least one seizure in their lifetime, and 1 in 26 will develop epilepsy. As one of those 1 in 26, I ask for your help to spreadContinue reading “November is National Epilepsy Awareness Month!”
Let’s Walk to END EPILEPSY!
I’m participating in the Walk to END EPILEPSY, and I want to invite you to support me in helping raise funds for the Epilepsy Foundation of Texas. As a person living with epilepsy, this is a cause that is close to my heart. Epilepsy is the third most common neurological condition, and it affects moreContinue reading “Let’s Walk to END EPILEPSY!”
November is National Epilepsy Awareness Month: Ready to spread awareness?
We’re a third of the way into the month so this post comes a little late, but late is better than never. November is National Epilepsy Awareness month, and this is our chance to share our story and educate others about seizures. _________________________________________________________________________________________________________ In the winter of 2009, I awoke to confusion as paremedics held anContinue reading “November is National Epilepsy Awareness Month: Ready to spread awareness?”
2018 Stroll for Epilepsy here we come!
With trying to get my seizures under control and adjusting to my new meds, unfortunately, I won’t be making it to the National Walk for Epilepsy in Washington this year. However, this doesn’t mean I can’t walk here in Texas! If you’re in the area and would like to walk for a good cause, please joinContinue reading “2018 Stroll for Epilepsy here we come!”
Unite and Wear Purple
For the past couple of months, I’ve been preparing myself for the National Walk for Epilepsy in DC. As I made my daily walk the other day, I realized the amount of progress I’ve made since surgery. Fifteen months ago, brain surgery had left my body weak. It was impossible to make it from my bedroom to the livingContinue reading “Unite and Wear Purple”