Epilepsy Awareness – Life: Crossed Out and Rewritten

The 2022 Walk to END Epilepsy is almost here!

As many of you know, epilepsy is a HUGE part of my life. Raising awareness and helping the Epilepsy Foundation Texas raise funds to provide medical care and support for people with epilepsy is something I’m very passionate about. My team, Game of Temporal Lobe, is participating in the Walk to END Epilepsy, and we’dContinue reading “The 2022 Walk to END Epilepsy is almost here!”

If I were to have a seizure, would you know what to do?

Ambulance on the road with the lights on.

I’m unconscious and unable to hear your call. My body is slowly starting to stiffen, and I begin to fall. The muscles are tightly contracted and wildly twitching and jerking out of control. Should you restrain me to stop my movements to prevent me from getting hurt, or do you just let the seizure takeContinue reading “If I were to have a seizure, would you know what to do?”

My epilepsy journey, plus YOU!

Over twelve years ago, I thought I had lost everything. When I heard those three little words (You have epilepsy), I thought the world had come crashing down. There was no room for survival, and my life was without a doubt over. Looking back now, I realize how much a drama queen I had been.Continue reading “My epilepsy journey, plus YOU!”

Monday Reflections: The Power of Social Media and Kindness

Oh, what a week it has been! Last week quickly came and went before I knew it. I was busy fundraising for The Walk to END Epilepsy, and it has been really fun and a lot more successful than I thought it would be. I was worried being socially distanced would make fundraising slightly moreContinue reading “Monday Reflections: The Power of Social Media and Kindness”

Gotta Catch ‘Em All

Dallas Walk to END Epilepsy Pokémon Raffle Have you heard of Pokémon? Chances are if you’re reading this, you’re a huge Pokémon fan like my husband and have been going on “Pokémon Hunts” to get your hands on cards. Well, maybe we can help each other out. I am fundraising for the Epilepsy Foundation ofContinue reading “Gotta Catch ‘Em All”

Purple Day 2021 is here!

I’m decked out in purple to spread epilepsy awareness. Are you? If you haven’t yet, there is still plenty of time to do so! Whether it’s wearing a purple shirt, coloring your hair purple, or putting some purple polish on your nails, please join me in spreading epilepsy awareness. Together we can fight the stigmaContinue reading “Purple Day 2021 is here!”

Purple Day 2021 is coming!

Purple Day is just around the corner, and I can’t wait to see everyone dressed in their favorite shade of purple. On March 26, I encourage you to wear purple to promote epilepsy awareness worldwide. By educating others, we can help remove the stigma surrounding epilepsy and work toward overcoming the challenges living with epilepsyContinue reading “Purple Day 2021 is coming!”

International Epilepsy Day 2021

The second Monday in February is International Epilepsy Day. More than 130 countries are coming together to spread epilepsy awareness. I encourage you to join this global effort by promoting awareness and sharing why epilepsy is more than just seizures. To kick it off, here is mine! Epilepsy is more than just worrying when theContinue reading “International Epilepsy Day 2021”

News from the pipeline: 2020 Epilepsy Community Day

Photo by Christophe Dion on Unsplash On a screen filled with pink and purple hues, white lines resembling brain waves merged to form the profile view of a person. A sweet and lively melody accompanied the image, and I waited patiently in excitement for the 2020 Epilepsy Pipeline Community Day to begin this past Saturday morning. JonContinue reading “News from the pipeline: 2020 Epilepsy Community Day”

Dialogue is the best medicine so let’s talk about it!

Photo by Amin Hasani on Unsplash The stigma and fear surrounding seizure disorders makes talking about epilepsy difficult. Telling someone about a very private part of your life that you might not quite fully understand yourself is nerve-racking. You can never know how a person might react and worry that you’ll be seen and treatedContinue reading “Dialogue is the best medicine so let’s talk about it!”