International Epilepsy Day

 

Just in case the title didn’t give it away, today is International Epilepsy Day!

What is International Epilepsy Day you might ask?

In 2015, the International Bureau for Epilepsy and the International League Against Epilepsy came together to provide a platform for people living with epilepsy to share their stories around the world. Now, the second Monday in February is designated to do just that.

Today, 120 countries advocate to spread awareness about this neurological disorder and fight to get legislative rights for people living with epilepsy. The goal is to educate, eliminate the public fear and stigma that comes with this disorder and encourage those living with epilepsy to live their life to the fullest.

Join the Epilepsy Community by helping us get #EpilepsyDay to trend on social media. Make Epilepsy Day successful so we can get better care, improved treatments and greater funds for much needed medical research.

Don’t know where to start? You can visit the International Epilepsy Day website to get some ideas.

Will you join me?

 

A National Walk for Epilepsy Thank You

This past weekend was the National Walk for Epilepsy in Washington, D.C., and it was a great one!

It’s wonderful being surrounded by people who fight for a better tomorrow for those living with epilepsy. Being an epilepsy survivor, this event means so much to me.

This eFight is a difficult one, and, at times, it seems impossible to go on. But, this doesn’t have to be the case.  In this walk, we help make each other stronger, as we work toward the same goal.

We walk to find a cure for epilepsy!

I am so thankful for all the donors and my teammates who supported me along the way. The walk was a success because of them!

To everyone who participated in the National Walk for Epilepsy, I want to thank you from the bottom of my purple heart!

Unite and Wear Purple

Go Purple Epilepsy Logo

For the past couple of months, I’ve been preparing myself for the National Walk for Epilepsy in DC. As I made my daily walk the other day, I realized the amount of progress I’ve made since surgery.

Fifteen months ago, brain surgery had left my body weak. It was impossible to make it from my bedroom to the living room alone. After a couple of months, although with difficulty,  I was finally able to walk from my doorstep to the mailbox. Today, I can walk, jog or run for as long as my not so athletic self can handle.

I’m proud of my accomplishments, but I can’t say it was easy getting there. Along my path to recovery, there have been many hurdles. I’ve felt like giving up more times than I can count, but I didn’t.

If there is anything epilepsy has taught me it’s this:

When you think you’ve taken one step forward just to take two steps back, don’t fret because it isn’t over. Life is a sea filled with mild and dangerous tides. Sometimes we need to be pulled back to come back so much stronger. The rough patch will pass, as long as we keep treading on. When all is over, we’ll realize the hurdles are nothing more than a nuisance because we are capable of walking through it all.

Today is Purple Day – Epilepsy Awareness Day!

It is a day I look forward to each year because it is a symbol that epilepsy doesn’t have to be a lonesome battle. When we come together on Purple Day, we take a step forward in finding an end to epilepsy.

So let’s talk about our seizing struggles and what we’ve done to hold strong. Educating others about epilepsy is important. We want others to be there for us just as much as they want to be there for us too. By raising awareness about this neurological disorder, we can do that.

This fight cannot be won alone, but I know we can all win. Let’s paint the world purple and spread awareness about epilepsy all around the world! 

Here are some links to help get you started.

Purple Day: http://www.purpleday.org/aboutepilepsy
Epilepsy Foundation: http://www.epilepsy.com
National Walk for Epilepsy: http://walkforepilepsy.org

 

Color me purple because I’m here to raise awareness about Lupus

purple ribbon

This is something I wrote awhile back. It’s about strength in unity. As I think of how important today is, I feel as if this entry was always meant for today. I hope you feel the same.

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There will be a day when pain will be no more, fear will go away, and there won’t be a reason to shed any tears.

Maybe not today, maybe not tomorrow, but one day. As we wait, be strong not just for yourself, but for someone out there who needs it. The strength you radiate will reach far out to someone else. A domino effect will be set into motion. No longer apart, but united we stand.

Speak out and be heard. You never know who is listening, but one thing is for sure, our voice does make a difference.

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Raising awareness for any cause starts with just one person.

May is National Lupus Awareness month. Lupus is a chronic autoimmune disease that can damage any part of your body. Let’s teach each other about it and support those who live with it everyday.

Let’s put on purple and raise awareness!

For more information about lupus, you can visit the Lupus Foundation of America site.