I miss the warm morning rays.I miss the cool winter breeze.I miss the glorious views.About you, I miss everything.Will I see you again? Only time will tell. But, until then, I’ll hold onto your dreamy memory.
A bird perched outside our window sill sings its lovely morning song. The light winter breeze rustles some leaves and creates a swishing sound. Everything feels as it should with no indication something could go wrong. But, the day was deceiving, and we couldn't foresee the news that came around. The doctors said you tried … Continue reading Monday Reflections: Blue Morning
Over the years, I've let this blog sort of wither. If I'm not in full gear, the engine is usually turned off. And, it really is time for a tune up! Although I could blame work, responsibilities, and, at times, poor health as reasons why, I simply can't. Life does have a way of changing … Continue reading 2021 Blog Goals
Photo by Christophe Dion on Unsplash On a screen filled with pink and purple hues, white lines resembling brain waves merged to form the profile view of a person. A sweet and lively melody accompanied the image, and I waited patiently in excitement for the 2020 Epilepsy Pipeline Community Day to begin this past Saturday morning. Jon … Continue reading News from the pipeline: 2020 Epilepsy Community Day
Photo by Amin Hasani on Unsplash The stigma and fear surrounding seizure disorders makes talking about epilepsy difficult. Telling someone about a very private part of your life that you might not quite fully understand yourself is nerve-racking. You can never know how a person might react and worry that you’ll be seen and treated … Continue reading Dialogue is the best medicine so let’s talk about it!
Since we've all been confined to the inside of our homes, it might seem a little harder to learn more about and advocate for the things we are passionate about. But in this virtual world we've all adapted to, anything is possible! As a big advocate for The Epilepsy Foundation, I'm excited that their 2020 Epilepsy … Continue reading Ending Epilepsy Starts With Us!
It's been over a decade where being poked with needles is normal. Although I'll admit that I still look away right as the needle pierces my skin, the process is anything but unusual. I know this procedure is necessary, but it will always be annoying. And honestly, the hardest part of getting your blood drawn, … Continue reading Lab Orders: The Struggle is Real
I’m alone. I'm in company with myself. My thoughts, my consciousness are my only companions. Between these four walls, I’m isolated from the life I used to live. I’m removed from what was and what will never be. In this place, change is nowhere to be found. Everyday is the same, constant. Each Cloned Day … Continue reading Monday Reflections: Epilepsy Visualized
The morning struggle is very real. Why can't responsibilities just disappear. Resting in my comfy bed is more than ideal. There's tons of paperwork on my desk. There's always another email to check. This place is far from picturesque. I wish everything could be more simple. Could all the boring and bad just fizzle? Can't … Continue reading Monday Reflections: A case of the Mondays
It's been two years since we had our last fight. Although it wasn't one of the most violent ones, it also wasn't the least. The fear you swept right through me that night I'll never forget. Panic. Terror. Dread. Those are the things I remember the most. You were very determined to ruin the tranquility I'd … Continue reading Dear Epilepsy…